Tuesday, September 29, 2009

Travelling with a Toddler

This trip to Philly was Joshua's first major trip. With all of his seizures, I had been nervous about taking him too far from home. We opted for driving to give me peace of mind...as I was terrified at the thought of him having a severe seizure while on a plane. And, we weren't sure how he would behave through airports & on a plane...not to mention having to drag a huge car seat along with all of the other stuff. Surprisingly, he did great in the car until the last day. We knew we would be making lots of stops & had planned to stop at several rest areas so Joshua could run around. For some reason, the state of Virginia has almost all of their rest areas closed! There were 2 open on the way to Philly & one open on the way home. Not sure what that was about, but it made it rough! Joshua did great adapting to hotels & being in different places.



He was quite helpful with the luggage!



He doesn't even look small on a king-size bed! We let him sleep with us on the trip & this is the position he often chose! He somehow managed to fall off of the bottom of the bed the first night.
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Jason & Haley's Wedding Part 2



Saying their vows



My parents with Jason & Haley.


They're married!



A mural painted by one of Jason's friends for the wedding.
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Jason & Haley's Wedding Part 1

Apparently, Blogger doesn't like me right now & isn't letting me upload photos, so I am having to post via Picasa, which only allows you to upload 4 pics at a time....technology!! Anyway...

My little brother got married this past weekend in Philadelphia. The wedding was in a vacant lot on the street where they will live. They had a block party to celebrate their wedding. The weather was great & everything was beautiful!



Jason & his pastor waiting for the wedding party.



Haley & her grandfather walking down the aisle.




The happy couple!
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Philly



Philadelphia City Hall



In front of the fountain at Love Park



Independence Hall
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Washington DC

We just got back from 6 day road trip to Philadelphia for my brother's wedding. We went through 7 states & DC, stayed in 5 different hotels & spent about 34 hours actually travelling. Fun times! Wedding photos to come in a later post.

Since we were going to be going around DC on the Capital Beltway anyway, we decided to spend one night in Chevy Chase, MD and take the subway into DC for a couple of hours. We managed to see the major monuments from the Mall & gets some pictures of Joshua in front of them.



John & Joshua in front of the Washington Monument.




We didn't have time to get close to the White House, but if you look in the background you can see it a couple of blocks away.



The Lincoln Memorial from the WWII Memorial.



Joshua & I at the WWII Memorial. He loved all of the fountains.
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Thursday, September 10, 2009

Summer Reading

I know summer is really over, but I am just now getting to posting this. I have considered many times but just never did. With Joshua having less therapy sessions during the summer, I somehow decided I had more time to read....even though I didn't have any time to read during the day. Anyway, I wanted to share a couple of books that I read. I think it shows alot about where my heart is & really where I still am in processing much of what we have been through.

The first is A Symphony in the Dark: Hearing God's Voice in Seasons of Grief. This book was recommended by a friend on her blog. I literally read it in a couple of hours. I couldn't put it down even though it is a heart-breaking story. I think anyone who has lost a child of any age should definitely read it. I think my favorite quote from the book is "the Creator of all beauty knows that in His living works of art and song the most beautiful are those who have known the darkness of pain and loss, thereby magnifying the lightness of great joys and delights" (by Barbara Rainey, pg 26).

The second book, which I am still reading, is Unexpected Journey: When Special Needs Change Our Course. Many people don't realize that Joshua is considered "special needs" at this point in his life. We have no idea if this will always be the case or not, but for now, we find ourselves to be caretakers of a special needs child....a job we didn't sign up for & didn't (still don't) feel prepared for. However, we are learning as we go & have seen many blessings from his precious life. This book is written by parents of a special needs child (now an adult). They continue to care for their son but also cared for parents who had special medical needs in their declining years. I think everyone should read this book for a couple of reasons. First, you never know what the future holds. An accident or medical condition could put you or someone you love in the role of a "special needs" person or caretaker. Second, it gives so much insight into what life is like for a family that has a person with special needs. I have read so many things in this book that I have thought & wished I could share with others but just didn't know how.

What is next on my reading list? I have already started a book that was written by the doctor who developed a certain type of therapy that we are trying with Joshua, and have another of his books that further discusses that therapy. After that, I plan to try to get to When God Breaks Your Heart: Choosing Hope in the Midst of Faith-Shattering Circumstances, The Hidden Smile of God, and The Challenging Child (yes, I admit that even though my child is cute & sweet....he is a challenge!). I think after all of that, I will be ready for some light reading. Of course, maybe all of this balances out the thousands of readings of Brown Bear, Brown Bear and Llama Llama Mad at Mama!!

Since I know it is wrong to post something so long & serious without any pictures, here is one from playing a couple of nights ago:

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